Doctors, babbles and bubbles....

It's been a while since I've posted last. I guess I got caught up in the craziness of daily life. I did't know a 10 month old could command so much attention. Sydney has been a busy girl between school, doctor's appointments and playing at the park.

We finally got her test results from the Usher Syndrome after an axious month of waiting. The test came up negative for the 4 of the 6 known types of Ushers they are able to test for. I was able to exhale just a little.

Syd had a couple of colds over the holidays that left her with fluid in her ears. I noticed that she seemed a little less responsive. We went to see her audi and sure enough her typanogram was flat indicating that she has flud in both ears. It took a good three months for it to clear up. After many booth tests and ENT appointments we finally got the good news that the fluid has drained (yeah!). The booth tests actually showed better responses in her right ear than her original ABR which was a little good news. I am glad we didn't have to get tubes, hopefully this won't be a reoccurring problem.

She also had an "in the ear" measure of her hearing aids which I read in a hearing loss magazine should always be done. It was quite the process and her poor 36 week pregnant audi in a 85 degree office was so patient with her. Syd has always been very good about allowing the audi to mess with her ears. It was a big feat trying to get this needle thin rubber tube in her ear with the hearing aid without it falling out. We got it done and she made some adjustments to her aids as a result.

Syd had this puzzling head tilt for the first 7-8 months of her life. It would last for months at a time and would switch from left to right. The PT ruled out torticollis. It seems to have gone away for the most part. But every now and then she will wake up with a head tilt. She will be lethargic and pale, and then vommit. It wasn't until this time around that it is not a stomach virus. This is the second or third time it has occured and seems to happen about once a month. What really concerned me this time was her eyes were jutting back and forth like she was watching the room spin. I thought maybe she was experiencing vertigo. So I looked up the symptoms on the internet and I came across a condtioncalled paroxysmal torrticollis which describes her symptoms exactly. Many times it is a benign condition that can eventually lead to vertigo and migraines later in life (if you want to call that benign...) and sometimes it can be a symptom of a larger condition. So now I am on a mission to find out what is going on. Her MRI came up clear which is a huge relief. We are meeting with an ENT next week so hopefully he can give us some more insight.

On a brighter note. Sydney started babbling about a 6 weeks ago and hasn't been quiet since. She says "baba" "dada", and seems to enjoy babbling at all waking hours which for her starts at 0530 (ughh). It's so great and cute and just love hearing her little voice. The beast is when she gets excited, like when I took her to see the fish at the pet store today. She can't contain herself and screams an ear piercing scream at the top of her lungs. I am surprised the fish were able to take it. People were starting to give me dirty looks, I was torn whether to muffle her a little because I was just happy she was so vocal about it.

Syd has made huge progress in the last couple of months. I do sign with her throughout the day as well as work with her on her speech. It is amazing how much she comprehends. I will verbally ask her to get some books to read, and she will crawl over to her books and pull them off the shelf. This morning I asked her where her foot was, and she grabbed onto it. And this eveing she she did the same for my nose and eyes. I am so happy I have this opportunity to spend with Sydney. Nothing is more rewarding and fulfilling than spending the day blowing bubbles and babbling with Syd.